What is the Hear Rare Roar Project?
As part of Rocket’s efforts to raise awareness for rare disease, especially Fanconi Anemia, Danon Disease, Leukocyte Adhesion Deficiency-I, Pyruvate Kinase Deficiency and Infantile Malignant Osteopetrosis, we have launched the Hear Rare Roar Project. The purpose of this project is to bring important and impactful stories about patients’ and families’ experiences with their rare disease to the forefront and spread awareness for these diseases. Interested in participating and being featured on Rocket’s website? Read more below, and click here to submit!