Loading Events

« All Events

DANON Patient & Family Meeting

March 20 - March 21

Free

Rocket Pharmaceuticals, Inc.
would like to invite you to a

DANON Patient & Family Meeting

March 20 – 21, 2020

Our goal is to bring the patient community together, enable
conversations on shared experiences and challenges, learn from
Danon experts, and hear about the latest research efforts

Meet and Greet: Friday, 5:00 pm-8:30 pm

Danon Patient & Family Event: Saturday, 9:00 am-5:00 pm

This event will also be webcast live

The Hyatt Regency Jersey City
2 Exchange Place
Jersey City, NJ 07302

Domestic travel and accommodations will be provided to
patients and a family member (or caregiver) interested in attending

For more information or questions, please email Danonday@rocketpharma.com

 

Friday, March 20

4:00 – 8:00 pm REGISTRATION
5:00 – 8:30 pm Opening Event/Dinner

  • Facilitated discussion moderated by the National Organization for Rare Disorders (NORD)
  • How early science led to development of a gene therapy for Danon disease
  • Why and how Rocket Pharma got involved

Saturday, March 21

4:00 – 8:45 am REGISTRATION & BREAKFAST
8:50 – 9:00 am Opening Remarks
9:00 – 9:30 am Setting the Stage: Danon Patient/Caregiver Perspectives
9:30 – 10:10 am Danon 101 and Q&A
10:10 – 10:20 am BREAK
10:20 – 11:10 am Danon Natural History and Q&A: What do we know about Danon disease and how can this
inform the development of a treatment?
11:10 – 12:00 pm Overview of the Danon Gene Therapy Clinical Trial and Q&A
12:00 – 1:00 pm LUNCH
1:00 – 2:15 pm Panel Session: Q&A on Danon Gene Therapy Clinical Trial and Danon disease
2:15 – 2:30 pm BREAK
2:30 – 3:45 pm Interactive discussion on the Nuts and Bolts of Patient Advocacy
3:45 – 4:00 pm Closing Remarks

Details

Start:
March 20
End:
March 21
Cost:
Free

Venue

NJ United States

Organizer

Rocket Pharmaceuticals, Inc.
Phone:
646.440.9100
Email:
DWO@rocketpharma.com
Website:
https://www.rocketpharma.com/

RSVP

RSVP DANON Patient & Family Meeting

Please fill in all required fields

Send RSVP confirmation to: